Refining Stories: Allison, A Special Needs Mom
/As part of my Refining Series, I’ll be sharing Refining Stories; stories of people who have wrestled with anger and disappointment with God. People changed, rebuilt and rescued by God. Allison, is a special needs mom. I pray by reading her story you’ll be strengthened to continue your own refining season, with the confidence of how God works all the hard things together for good. I’m honored to have Allison share her story.
Allison’s Story
Sitting at the kitchen table, scrolling through Pinterest, I heard my husband Ben answer his phone. We’d been waiting on this call for a couple of weeks and my heart constricted tighter and faster listening to his end of the conversation. Though he was mostly nodding and scribbling notes, not saying much, I could tell the results showed something.
Hanging up the phone, he turned to tell me the results: a rare (1 in 100,000 boys) genetic disorder. Three extra chromosomes. A spectrum of possibilities but physical and intellectual difficulties guaranteed. Apraxia. Hypotonia. Possible heart issues. Anxiety. Recurring pneumonia. Of course, our pediatrician advised us not to Google the syndrome, and of course, I didn’t listen.
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